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Gavin led the development of IAMRARE, the first natural history patient registry platform for the rare disease community.
She also expanded NORD's service offerings including its RareCare patient and caregiver assistance programs which has provided nearly $175 million in financial support within the past five years.
Gavin held several roles focused on improving healthcare safety and delivery, including as a government consultant.
Selected Grant News Headlines
A customized collection of grant news from foundations and the federal government from around the Web.
Sustainability As A Driver For Sustainable Growth 
WBCSD aims to reduce 1 gigaton of GHG emissions (1 billion mtCO2 e) from its customers' carbon footprints by 2030 from a 2019 baseline.Over the last five years, we've reduced our customers'carbon...more
WBCSD aims to reduce 1 gigaton of GHG emissions (1 billion mtCO2 e) from its customers' carbon footprints by 2030 from a 2019 baseline.Over the last five years, we've reduced our customers'carbon...more
Breaking: Musk Foundation Steps in With Major Donation to Save Boys and Girls Club of ... 
Musk Foundation steps in to fill a critical funding gap after federal support unexpectedly fell through earlier this year.The exact amount of the donation has not yet been disclosed, but sources...more
Musk Foundation steps in to fill a critical funding gap after federal support unexpectedly fell through earlier this year.The exact amount of the donation has not yet been disclosed, but sources...more
Kfc Launches Heartlands Forest Fund 
The Keweenaw Community Foundation launched the KEWeenaw Heartland Forest Fund Friday evening.The fund was established to support local management, sustainable access, and long-term care of...more
The Keweenaw Community Foundation launched the KEWeenaw Heartland Forest Fund Friday evening.The fund was established to support local management, sustainable access, and long-term care of...more
Zte Launches Children Care Charity Campaign in Thailand 
The initiative saw ZTE donate essential supplies and digital connectivity solutions worth 1 million THB to a Public charity organization, Baan Nokkamin Foundation.This foundation provides foster...more
The initiative saw ZTE donate essential supplies and digital connectivity solutions worth 1 million THB to a Public charity organization, Baan Nokkamin Foundation.This foundation provides foster...more
148 Hospital and Health System Cios to Know 
Akeroyd serves as CIO of Lee Health, a role he assumed in June 2025 after nearly a decade with Children's Health in Dallas.Baker oversees IT, health information management, medical informatics,...more
Akeroyd serves as CIO of Lee Health, a role he assumed in June 2025 after nearly a decade with Children's Health in Dallas.Baker oversees IT, health information management, medical informatics,...more
New Vistas Provides Early Childhood Screening, Disability Support and Much More 
We provide five core services: Advocacy, Independent Living Skills Training, Peer Support, Information and Referral, and Transition.Early intervention starts at birth and goes to age 3, with...more
We provide five core services: Advocacy, Independent Living Skills Training, Peer Support, Information and Referral, and Transition.Early intervention starts at birth and goes to age 3, with...more
Paul Petruska 
The passing of my father was a transformative moment for me.This perspective shift is why I now dedicate much of my energy to youth programs and community development.I've leaned heavily on...more
The passing of my father was a transformative moment for me.This perspective shift is why I now dedicate much of my energy to youth programs and community development.I've leaned heavily on...more
Community Foundation Growing Philanthropy in the Shenandoah Valley 
Janet was joined by the CFNSV's executive director, Nancy Baker, and Erik Beatley, the board chair.They shed light on the foundation's crucial role in the community and their efforts to bolster local...more
Janet was joined by the CFNSV's executive director, Nancy Baker, and Erik Beatley, the board chair.They shed light on the foundation's crucial role in the community and their efforts to bolster local...more
Openai's Advisory Board Calls For Continued, Strengthened Nonprofit Oversight 
OpenAI should continue to be controlled by a nonprofit.The artificial intelligence technology it is developing is "too consequential" to be governed by a corporation alone.The recommendations are not...more
OpenAI should continue to be controlled by a nonprofit.The artificial intelligence technology it is developing is "too consequential" to be governed by a corporation alone.The recommendations are not...more
Acf of Yavapai County Reaches $100M in Assets
Foundation: Arizona Community Foundation
Arizona Community Foundation of Yavapai County has surpassed $100 million in assets under management.The milestone reflects the deep trust the community places in the community foundation.ACF is...more
Foundation: Arizona Community Foundation
Arizona Community Foundation of Yavapai County has surpassed $100 million in assets under management.The milestone reflects the deep trust the community places in the community foundation.ACF is...more
Nonprofit Management News from...
Washington Area Women's Foundation
Arizona Community Foundation
Changemakers
Community Foundations of the Hudson Valley
Headwaters Foundation for Justice
MacArthur Foundation
Marguerite Casey Foundation
San Francisco Foundation
Hewlett Foundation
Zellerbach Family Foundation
Social Entrepreneurship
Spotlight
When it Comes to Social Enterprises, Failure is the Best Platform for Innovation
In the world of social enterprises, failure is a cringe-worthy moment nobody wants to talk about. But, social entrepreneurs can benefit from their failures.
